
An international nonprofit leading the fight against Spinal Muscular Atrophy is asking for help in winning approval of the NPRNA in the U.S. Senate.
An international nonprofit leading the fight against Spinal Muscular Atrophy is asking for help in winning approval of the NPRNA in the U.S. Senate.
FDA Week, a Washington, D.C. newsletter, provides coverage of the National Pediatric Research Network Act, a bill designed to help speed a cure for a number of diseases that is backed by FightSMA.
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A bill to authorize the National Institutes of Health (NIH) to support the creation of up to 20 pediatric research consortia focused on diseases such as spinal muscular atrophy (SMA) was introduced in the U.S. House of Representatives.
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International nonprofit FightSMA is naming a new executive director and moving its headquarters from Richmond, Virginia to Washington D.C.
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The 2011 FightSMA Annual Conference, the Good Fight, is underway at the L’Enfant Plaza Hotel this week, and spinal muscular atrophy experts are gearing up to participate in a one-of-a-kind webcast.
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Recognizing the need for information on spinal muscular atrophy (SMA) FightSMA, an international nonprofit organization dedicated to finding a cure for SMA, is announcing the launch of its all new website, http://www.fightsma.org.
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Another Big Year for Fight SMA’s Annual Spinal Muscular Atrophy Conference (Richmond, VA) — The 2009 version of “The Good Fight”, Fight SMA’s Annual Spinal Muscular Atrophy Conference, wrapped up on Tuesday, April 28, and it was another successful year! Here are a few of the highlights: 20 researchers and two additional graduate students from […]
Traveling with a sick child is always difficult, even when the trip in question involves learning more about the child’s illness. That difficulty has only been amplified by the current state of the economy. For that reason, Fight SMA (http://www.fightsma.org) is providing a free live webcast of two seminars from this year’s Family and Friends Annual Spinal Muscular Atrophy Conference in Washington D.C.