Tag Archives: fight sma

Fight SMA Launches Gene Therapy Fundraising Campaign: "Realizing the Dream"

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Richmond-based FightSMA announced today a new fundraising campaign for SMA gene therapy, “Realizing the Dream.”
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FightSMA Awards $250,000 Grant to Gene Researcher at The Ohio State University

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FightSMA, a nonprofit dedicated to developing a treatment for the deadly childhood crippler spinal muscular atrophy (SMA), is awarding a $250,000 research grant to Dr. Brian Kaspar, a principal investigator at Nationwide Children’s Hospital and associate professor of The Ohio State University.
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FightSMA Canada, CML HealthCare and The Children’s Hospital of Eastern Ontario Foundation Unite to Provide $500,000 Research Grant

FightSMA Canada, a chapter of the Richmond-based FightSMA nonprofit organization has been awarded C$500,000 in grants from CML HealthCare of Mississauga and the Children’s Hospital of Eastern Ontario (CHEO) to advance spinal muscular atrophy (SMA) research.
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CML HealthCare and FightSMA Canada Join Forces

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CML HealthCare of Mississauga, Ontario has partnered with FightSMA Canada, a chapter of Richmond-based FightSMA nonprofit organization, to find a cure for spinal muscular atrophy (SMA), the leading genetic cause of death among children under the age of two.
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Thousands Use Twitter to Support Spinal Muscular Atrophy Research

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New Application Helps Twitter Users Contact Legislators about SMA (Santa Barbara, CA) – Millions of people ‘Tweet’ every day, and Bill Strong knew there had to be a way to harness all of that online talk to help end spinal muscular atrophy, a disease that is affecting him very personally. With a Twitter application called […]

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New Fight SMA Web Video Updates the State of Spinal Muscular Atrophy Research

Fight SMA Publishes Web Video from 2009 Spinal Muscular Atrophy Conference Richmond, VA (June 16, 2009) – The Fight SMA 2009 Annual Spinal Muscular Atrophy Conference, The Good Fight, featured many firsts.  One of the most important to SMA families was the first-ever webcast of the “Friends and Family” portion of the conference.  Now, Fight […]

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First Annual Fighter Mom Workshop

NEW YORK, New York — A special day-long workshop for mothers fighting diseases and health challenges that face their children will be held on Friday, May 9, 2008, from 8 a.m. to 5 p.m., at the New York Palace Hotel in New York City.






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